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pages home pr and press fitness - my story tuesday, 21 june 2016 i've moved! new blog at the end of 2014 i started my new blog jaimie loren . in searching for some old photos i realised i never posted about it here, so please join me over at jaimie loren ! see you soon :) posted by java kook at 21:11 2 comments tuesday, 10 february 2015 tysabri day vlog posted by java kook at 19:44 1 comments labels: ms , tysabri , vlogs tuesday, 21 october 2014 promixx 2.0 demo & review posted by java kook at 20:43 1 comments labels: fitness , health , reviews , supplements thursday, 7 august 2014 ms/another thing drama. i was meant to write this blog as soon as i was home from hospital. the problem was, i just couldn’t find the words to describe what was happening. everything was and still is, up in the air. i’ve been lost in a state of ‘the great unknown’ and my mind lately has resembled the old bbc test card. i guess a good place to start is what actually happened? i’ve had a pretty horrific ms relapse. it started out pretty normal, but i had to stop my steroid treatment as my annual mri was coming up. i tried my absolute best to keep going without the steroids. my sight was already better and i just kept very quiet trying to rest as much as possible. but then my mri was rescheduled and pushed back another 2 weeks. it was hell, and 4 days before my mri after speaking with my nurse we decided it was best that i start the steroids again because as it stood there was no way i could even make the appointment in southampton. at this time my walking and weight bearing was bad. i was on both crutches but really struggling to keep myself up. i was falling and collapsing left right and centre too. i made the appointment, even though on the ferry over i had a phone call from them saying both machines had broken and they would have to reschedule. after telling them i was already on my way they said i could sit and wait, but luckily just as i arrived the engineers had got one of the machines working, and i was seen straight away. a few days later although my sight was 99% back my body gave up. and i mean really gave up. suddenly not only was i unable to walk but i wasn’t even able to stand. i called my gp and they came out to my house straight away, before i knew it i was in an ambulance on the way to hospital. after a brief spell in a&e i was transferred to mau where i told them about what my consultant had said to me a month prior. she mentioned the new treatment campath as we’re querying whether or not tysabri is really working for me. when i next relapsed she would try and admit me to southampton, investigate and go from there. while i was there i was trying to keep in touch with my consultant but there is no signal at all. my nurse came to the rescue and at 6am one morning managed to pass on my consultant’s number. later that day a bed became available in southampton and off i went by ambulance (just missing a trip by helicopter which i was actually pretty miffed about). i was there for nearly 2 weeks, and it wasn’t a nice experience but we did find a lot out. well kind of. i saw my consultant and she ordered numerous different tests. very calmly she explained that my symptoms suggest that it’s something and not necessarily just my ms playing around here and that she wanted me to see rheumatology urgently. when you have one inflammatory disease it makes you prone to getting others. my hip x-ray was done that night and i also finally had a spinal mri a few days later which showed what i knew all along, that i have lesions on my spine as well as my brain. when my consultant saw me again she told me that two of the lesions on my brain have actually shrunk so wants me to stay on tysabri for the time being. the rest of the tests weren’t able to be done and it was agreed that i would have them as an outpatient or i would still be in hospital and rehab right now. i really didn’t want to go to rehab. i would have been more isolated than if i was in hospital. thankfully by then my steroids had really started to kick in (it can take about 2 weeks to feel the full effect) and with that in mind i decided to push myself to get out of my wheelchair and learn to walk again. by the 4th day of trying i was waddling without any aid what so ever. i told everyone i would walk out on discharge and nothing was going to stop me. they let me go home and things have really been a struggle. i’m finding that as the steroids are going out of my system now the worse i’m getting again. my walking is rapidly going down hill and the pain is horrific. i’ve had my appointments through, evoked potentials are next week in southampton and as for rheumatology after they told me the earliest the can do is the 30th of september my nurse kicked off and suddenly i’m now being seen tomorrow. she is also putting other things into place for me including a care manager and pushing my wheelchair assessment to be done asap. from what everyone is telling me, they think i have rheumatoid arthritis. it’s not definite, it could be other things which they will also test for, but this is the route they’re concentrating on right now. the more i think about it the more it would make sense. i can’t remember a time when i wasn’t in pain with my joints, even as a child but it was always put down to ‘growing pains’. i had to pack in pe in year 6 because of it. since i have been diagnosed with ms i put it down to that, but my ms has never exactly been normal and this would explain it. as i sit here right now it feels like my hips, ankles, wrists and fingers are all being stabbed. i’m exhausted with it. anyway my heads gone blank again, so i shall leave you with a couple of vlogs from my hospital stay and some mri images. posted by java kook at 15:07 2 comments labels: health , illness , ms , tysabri , update , vlogs older posts home subscribe to: posts (atom) google+ followers about me java kook islander, artist, struggling actress, gamer, mum, lover of space and astrophysics, films, cooking and food in general, fitness freak. diagnosed with multiple sclerosis in nov '11 and trying to kick it's ass. when my body allows i hula hoop and dance. disability and no amount of pain will ever hold me down! current weight loss: 9st 2lb (aug '14) view my complete profile blog archive ▼ 2016 (1) ▼ june (1) i've moved! new blog ► 2015 (1) ► february (1) ► 2014 (22) ► october (1) ► august (1) ► june (1) ► may (2) ► april (4) ► march (4) ► february (9) ► 2013 (49) ► december (3) ► november (2) ► october (1) ► september (4) ► august (4) ► july (6) ► june (12) ► may (2) ► april (7) ► march (1) ► february (6) ► january (1) ► 2012 (19) ► december (3) ► november (4) ► october (6) ► september (1) ► august (1) ► june (1) ► april (1) ► february (2) ► 2011 (42) ► december (2) ► november (1) ► october (1) ► september (3) ► august (1) ► july (5) ► june (3) ► may (5) ► april (7) ► march (5) ► february (6) ► january (3) ► 2010 (60) ► december (2) ► november (1) ► october (9) ► september (3) ► august (2) ► july (8) ► june (9) ► may (9) ► april (8) ► march (3) ► february (3) ► january (3) ► 2009 (5) ► december (5) labels animals (1) astronomy (2) autism (2) autumn (10) awards (1) baking (2) beach (2) bestival (2) birthdays (4) books (1) bring back babyfirsttv (1) cakes (4) cambridge weight plan (7) cats (2) challenges (8) chicken (1) christmas (7) complaints (5) cosplay (1) crafting (9) crochet (2) daily motivation (6) days out (5) dieting (18) diy friday (1) driving (1) east cowes (2) eating out (3) events (10) fashion (5) festivals (2) films (4) fitness (28) flowers (6) food (12) friends (10) gardening (6) give aways (1) hair and beauty (12) health (43) hoarders (2) housework (4) illness (32) in the news (7) interflora (1) island issues (3) island life (18) jewelry (2) knitting (1) kook loves (7) kook remembers (3) kook's questions (2) life (24) magazines (1) makeup (13) me (35) medications (3) ms (37) news (1) nutrition (11) online (4) pampers (5

URL analysis for kookblogs.co.uk

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jaimieloren.co.uk

Whois Information

Whois is a protocol that is access to registering information. You can reach when the website was registered, when it will be expire, what is contact details of the site with the following informations. In a nutshell, it includes these informations;

Domain name:
kookblogs.co.uk

Registrant:
Jaimie Sereno

Registrant type:
UK Individual

Registrant's address:
87 ALVINGTON MANOR VIEW
NEWPORT
ISLE OF WIGHT
PO30 5NZ
United Kingdom

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 08-Jul-2013

Registrar:
123-Reg Limited t/a 123-reg [Tag = 123-REG]
URL: http://www.123-reg.co.uk

Relevant dates:
Registered on: 08-Jul-2013
Expiry date: 08-Jul-2019
Last updated: 01-Jul-2017

Registration status:
Registered until expiry date.

Name servers:
ns.123-reg.co.uk 212.67.202.2
ns2.123-reg.co.uk 62.138.132.21

WHOIS lookup made at 05:53:25 08-Jan-2018

--
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:

Copyright Nominet UK 1996 - 2018.

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER co.uk.whois-servers.net

  ARGS kookblogs.co.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION Jaimie Sereno

TYPE
UK Individual

ADDRESS
87 ALVINGTON MANOR VIEW
NEWPORT
ISLE OF WIGHT
PO30 5NZ
United Kingdom
Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 08-Jul-2013

DOMAIN

  SPONSOR 123-Reg Limited t/a 123-reg [Tag = 123-REG]

  CREATED 2013-07-08

  CHANGED 2017-07-01

STATUS
Registered until expiry date.

NSERVER

  NS.123-REG.CO.UK 212.67.202.2

  NS2.123-REG.CO.UK 62.138.132.21

  NAME kookblogs.co.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED yes

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